I thought it was time for a little catch up post, as I know that many of you have enjoyed her appearances on the blog and since she has been sick have asked how she is either on the blog in comments or via emails and the like and having spent most of last week with her I thought this would be timely.
Poor Gran, she has had a rocky week or so. Her walking has deteriorated and so now she can stand up but that is about it, which is so irritating for both her sense of independence and also having accomplished so much over the last few months since her stroke-that-was-actually-a-tumour-bleed that left her half paralysed. I think it must be maddeningly frustrating especially after the rigmarole of radiotherapy (which we are all pleased she has had as it’s given us another 6 – 9 months and amazingly after losing some of her hair it is now growing back black, she says black hair with white around all the edge will be a new trend!).
She has also just been feeling generally unwell and not wanting to eat from a constant dizziness and nausea. The other thing, and I don’t mean to moan but sometimes a vent is helpful, is that to be honest the NHS are being absolutely s**t, we have an NHS Care Manager who doesn’t care and a District Nurse who tells us to contact her and is, erm, never there. I normally think we are very lucky for the NHS, and know this won’t be the same for everyone, but at the moment it is proving a nightmare. I spent 5 hours on the phone, when I could have been sat with Gran, sorting out a Macmillan nurse at the hospice for her simply because no other bugger had.
Sorry for the mild swearing there but it is just so infuriating, someone with a terminal prognosis of ANY length should be looked after and have the minimal admin, form filling, telephone calls and general sorting out of stuff to do. They should be allowed to do whatever makes them happy in their final months, seeing family and friends, eating ridiculous amounts of chocolate (and falling asleep so being caught in the act – see picture below) and just enjoying their time. Not spending hours and hours with bureaucracy and pen/paper pushing. Oh and don’t even get me started on the night time care, I wouldn’t normally slate charities but Marie Curie have been dreadful, they have pulled out of the last four nights of care last minuet… anyway, let us move on. End of rant.
As usual of course Gran and I have been talking lots about books. She has read and very much admired Laurent Binet’s ‘HHhH’ (which I need to pilfer back) and has started and absolutely loved Tarquin Hall’s series of detective mysteries featuring Vish Puri and set in India. She has just read her first Val McDermid, seems she is having a crime phase, which she found ‘very page turning’ and is now deep into the latest Philip Kerr. Oh and she liked the Women’s Prize for Fiction shortlist (and has read a few of them, including the Mantel which she will not bash) though she did say ‘why has the name of the prize become so long, not catchy is it?’ Ha!
So that is the latest with Gran really, I will keep you updated and pass on your thoughts. I am off mid Literary Festival on the 6th as, bless her, she has to have one of her teeth extracted and a root canal, as if having a brain tumour wasn’t enough hey? Back with bookish bits tomorrow… In the meantime if you know any books like the above Gran might like do please let me know!